A six-year-old girl had half her brain turned off to relieve her of seizures and pain - ForumDaily
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A six-year-old girl had half her brain turned off to relieve her of seizures and pain.

A six-year-old girl with a rare neurological disease recently underwent surgery in Los Angeles that resulted in half of her brain being disabled, reports People.

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Brianna Bodley, who was diagnosed with Rasmussen's encephalitis in August 2022, is recovering from a functional hemispherectomy on September 28, according to the page GoFundMe, hosted by her mother Crystal Bodley.

"She has a very long road to recovery, but she is a strong and determined little girl," Brianna's mother Crystal wrote on her GoFundMe page.

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The National Institute of Neurological Disorders and Stroke (NINDS) describes Rasmussen's encephalitis (ER) as "a very rare chronic inflammatory neurological disease that usually affects only one hemisphere (half) of the brain."

Symptoms include frequent and severe seizures, inflammation of the brain (also known as encephalitis), deteriorating mental status, and progressive loss of neurological functions such as motor skills, speech, and mobility on one side of the body, according to NINDS.

According to Brianna's GoFundMe page, she was diagnosed with the condition after she was hospitalized twice within a month after having several seizures at night.

Because several medications failed to stop the seizures that were damaging Brianna's brain, she was recommended to undergo a functional hemispherectomy. The surgery disconnects the brain's hemispheres from each other, which is "the only cure for seizures caused by EC," according to the GoFundMe page.

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“She was in pain due to constant cramping in her leg that twitches all day, even when she sleeps,” Krystal wrote.

She also said her daughter's leg "kept bent and she had difficulty walking."

As a result, Dr. Richard Aaron Robison of Loma Linda University Health performed a 10-hour operation.

“Simply turning off the brain is enough to completely and essentially stop the disease and potentially cure it,” he said.

“Brianna will still be the same person even after half her brain is turned off,” Robison explained.

As of October 3, Krystal wrote in an update to the GoFundMe page that Brianna's medical team is focused on "trying to help her cope with the pain." The six-year-old will also begin "intensive rehabilitation to learn how to walk and use her arm, speech therapy and more."

According to the page, Brianna will undergo rehab until "she can walk and move her arm again," but she will "never regain fine motor skills in her left hand or peripheral vision in her left eye."

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“She has a very long road to recovery but she is a strong and determined little girl. I know she will do great things and overcome all of this,” her mother wrote.

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