One case in a million: Celine Dion was diagnosed with a rare disease, and it prevents her from singing
Celine Dion has revealed that she has been diagnosed with Stiffness Syndrome (SPS). This is a very rare neurological disorder with features of an autoimmune disease. The edition told in more detail with the BBC.
The 54-year-old Canadian singer said that because of the disease, involuntary spasms occur in her muscles.
According to her, it is difficult for her to walk and sing, so she will not be able to work out the planned concerts in the UK and Europe next year.
“I have had health problems for a long time,” the singer said. “It was very difficult for me to face these challenges and tell about everything that I went through.”
“Recently, I was diagnosed with a very rare neurological disorder called stiffness syndrome, which affects one in a million people,” the singer continued in your video message. "The spasms affect every aspect of my daily life, sometimes causing difficulty walking, preventing me from using my vocal cords to sing the way I used to."
“It pains me to tell you today that I will not be ready to resume my European tour in February,” the singer said.
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In 2014, the star, whose track My Heart Will Go On from the Titanic soundtrack won the Oscar for best song, said she was putting her career on hold "indefinitely." Then her husband René Angelil was battling cancer.
Although she resumed performing a year later, in early 2016, the singer left the stage again after the tragic death of Angélil and her brother Daniel Dion.
Eventually, Celine returned with the 2019 studio album Courage, which featured collaborations with Sia, Sam Smith, and David Guetta.
"This was hard"
In support of the album, the star went on a world tour, much of which had to be postponed due to the COVID-19 pandemic. She was forced to reschedule concerts again this year due to "severe and persistent muscle spasms".
But Dion reassured her fans that she has a "great team of doctors working with her to help her get better," and the kids are supportive and helpful.
She said: “I work hard every day with my sports medicine therapist to regain my strength and ability to compete again, but I have to admit it's hard. The only thing I can do is sing. This is what I have been doing all my life and this is what I love doing the most. I miss you very much".
“I always give 100 percent when I do my show, but my condition does not allow me to do it now,” admitted Dion.
What is SPS and is there a cure for it?
SPS is a very rare and understudied disease.
According to the UK's National Institute of Neurological Disorders, it is characterized by "variable stiffness of the muscles of the trunk and limbs and increased sensitivity to stimuli such as noise, touch and emotional stress, which can cause muscle spasms."
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People with SPS may be too sick to walk or move. They are afraid to leave the house, because street noise or a loud sound, such as a horn, can cause convulsions and falls.
Most people with SPS often fall, and because they lack normal protective reflexes, injuries can be very serious.
Although there is no cure for SPS, there are treatments, such as anti-anxiety drugs and muscle relaxants, that can slow down the disease.
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